Open access

Déterminants sociaux de la santé et symptômes dépressifs chez les mères de jeunes enfants ayant un trouble du spectre de l'autisme (TSA)

Publication: Canadian Journal of Community Mental Health
29 Octobre 2013

Résumé

Les études montrent avec constance que les mères d'enfants ayant un trouble du spectre de l'autisme (TSA) présentent des niveaux particulièrement élevés de détresse. Cette étude vise à identifier les déterminants sociaux de la santé pouvant contribuer au développement des symptômes dépressifs de ces mères. Les analyses statistiques effectuées sur un échantillon de convenance de 112 mères de jeunes enfants ayant un TSA conduisent vers un modèle composé de 5 variables permettant conjointement d'expliquer 41 % de la symptomatologie dépressive des mères. Les implications de ces résultats sur les services offerts aux familles d'enfants ayant un TSA seront plus amplement discutées.

Abstract

Many studies show that mothers of children with Autism Spectrum Disorders (ASD) have a particularly high level of psychological distress. This study aims to identify social determinants of health that contribute to the development of symptoms of depression in these mothers. Statistical analyses performed on a convenience sample of 112 mothers of young children with ASD leads to a model consisting of 5 variables that together explain 41% of the symptoms of depression. The implications of these results for services offered to families of children with ASD will be further discussed.

Formats available

You can view the full content in the following formats:

References

Aubin, J., Boucher, M., Camirand, J. et Courtemanche, R. (2007). Recension et synthèse critique des enquêtes sociales et de santé, 1995–2005. Québec : Institut de la statistique du Québec. Consulté à : http://www.stat.gouv.qc.ca/publications/sante/pdf2007/recension95_05.pdf
Baker D. L. and Drapela L. A. Mostly the mother: Concentration of adverse employment effects on mothers of children with autism Social Science Journal 2010 47 3 578 -592
Baker-Ericzén M. J., Brookman-Frazee L., and Stahmer A. Stress levels and adaptability in parents of toddlers with and without autism spectrum disorders Research and Practice for Persons with Severe Disabilities 2005 30 4 194 -204
Ballard C. G., Davis R., Cullen P. C., Mohan R. N., and Dean C. Prevalence of postnatal psychiatric morbidity in mothers and fathers British Journal of Psychiatry 1994 164 782 -788
Barrera, M. (1981). Social support in the adjustment of pregnant adolescents: Assessment issues. Dans B. H. Gottlieb (dir.), Social networks and social support (pp. 69-96). Beverly Hills, CA: Sage.
Beaud L. and Quentel J. C. Information et vécu parental du diagnostic de l'autisme II: effets des troubles et qualité de vie Annales médico-psychologiques 2011 169 2 132 -139
Benson P., Karlof K. L., and Siperstein G. N. Maternal involvement in the education of young children with autism spectrum disorders Autism 2008 12 1 47 -63
Brobst J. B., Clopton J. R., and Hendrick S. S. Parenting children with autism spectrum disorders: The couple's relationship Focus on Autism and Other Developmental Disabilities 2009 24 1 38 -49
Bromley J., Hare D. J., Davidson K., and Emerson E. Mothers supporting children with autistic spectrum disorders: Social support, mental health and satisfaction with services Autism 2004 8 4 409 -423
Burton P., Lethbridge L., and Phipps S. Children with disabilities and chronic conditions and long-term parental health Journal of Socio-Economics 2008 37 3 1168 -1186
Camirand, H., Bernèche, F., Cazale, L., Dufour, R. et Baulne, J. (2010). L'Enquête québécoise sur la santé de la population, 2008 : pour en savoir plus sur la santé des Québécois. Rapport de recherche. Québec : Institut de la statistique du Québec. Consulté à http://www.stat.gouv.qc.ca/publications/sante/pdf2010/Rapport_EQSP.pdf
Carlson D. S., Kacmar K. M., and Williams L. J. Construction and initial validation of a multidimensional measure of work-family conflict Journal of Vocational Behavior 2000 56 2 246 -276
Cidav Z., Marcus S. C., and Mandell D. S. Implications of childhood autism for parental employment and earnings Pediatrics 2012 129 4 617 -623
Courcy I., des Rivières-Pigeon C., and Sabourin G. L'expérience des familles de jeunes enfants ayant un trouble dans le spectre de l'autisme (TSA) en contexte d'intervention comportementale intensive (ICI ) au Québec Bulletin scientifique de l'Arapi 2012 29 54 -49
Cox J. L., Holden J. M., and Sagovsky R. Detection of postnatal depression: Development of the 10-item Edinburgh Postnatal Depression Scale British Journal of Psychiatry 1987 150 782 -786
des Rivières-Pigeon C., Saurel-Cubizolles M.-J., and Romito P. Division of domestic work and psychological distress one year after childbirth: A comparison between France, Italy and Quebec Journal of Community and Applied Social Psychology 2002 12 6 397 -409
Dunn M. E., Burbine T., Bowers C. A., and Tantleff-Dunn S. Moderators of stress in parents of children with autism Community Mental Health Journal 2001 37 1 39 -52
Eisenhower A. S., Baker B. L., and Blacher J. Preschool children with intellectual disability: Syndrome specificity, behaviour problems, and maternal well-being Journal of Intellectual Disability Research 2005 49 9 657 -671
Estes A., Munson J., Dawson G., Koehler E., Zhou X-H., and Abbot R. Parenting stress and psychological functioning among mothers of preschool children with autism and developmental delay Autism 2009 13 4 375 -387
Gilliam, J. E. (1995). Gilliam Autism Rating Scale. Austin, TX : Pro-Ed.
Goin-Kochel R. P., Myers B. J., and Mackintosh V. H. Parental reports on the use of treatments and therapies for children with autism spectrum disorders Research in Autism Spectrum Disorders 2006 1 3 195 -209
Goldberg M., Melchior M., Leclerc A., and Lert F. Les déterminants sociaux de la santé : apports récents de l’épidémiologie sociale et des sciences sociales de la santé Sciences sociales et santé 2002 20 4 75 -128
Gray D. E. “Everybody just freezes. Everybody is just embarrassed”: Felt and enacted stigma among parents of children with high functioning autism Sociology of Health and Illness 2002 24 6 734 -749
Gray D. E. Gender and coping: The parents of children with high functioning autism Social Science and Medicine 2003 56 3 631 -642
Green S. “What do you mean ‘what's wrong with her?’”: Stigma and the lives of families of children with disabilities Social Science and Medicine 2003 57 8 1361 -1374
Greenhaus J. H. and Beutell N. J. Sources of conflict between work and family roles Academy of Management Review 1985 10 1 76 -88
Guedeney N. and Fermanian J. Validation study of the French version of the EPD S: New results about use and psychometric properties European Psychiatry 1998 13 2 83 -89
Hasting R. P., Kovshoff H., Ward N. J., degli Espinosa F., Brown T., and Remington B. System analysis of stress and positive perceptions in mothers and fathers of pre-school children with autism Journal of Autism and Developmental Disorders 2005 35 5 635 -478
Higgins D. J., Bailey S. R., and Pearce J. C. Factors associated with functioning style and coping strategies of families with a child with an autism spectrum disorder Autism 2005 9 2 125 -137
Institut de la statistique du Québec. (2009). Enquête sur la population active Statistique Canada, 2008–2011. Québec : Institut de la statistique du Québec, Service des statistiques sociales et démographiques, Direction des statistiques du travail et de la rémunération. Consulté à http://www.stat.gouv.qc.ca/donstat/societe/famls_mengs_niv_vie/tendances_travail/tab_web_fam_tab_1.htm
Järbrink K. The economic consequences of autistic spectrum disorder among children in a Swedish municipality Autism 2007 11 5 453 -463
Johnson N., Frenn M., Feetham S., and Simpson P. Autism spectrum disorder: Parenting stress, family functioning and health-related quality of life Family, Systems and Health 2011 29 3 232 -252
Keller D. and Honig A. S. Maternal and paternal stress in families with school-aged children with disabilities American Journal of Orthopsychiatry 2004 74 3 337 -348
Konstantareas M. M. and Papageorgiou V. Effects of temperament, symptom severity and level of functioning on maternal stress in Greek children and youth with ASD Autism 2006 10 6 593 -607
Kozloff, M. A. et Rice, J. S. (2000). Parent and family issues: Stress and knowledge, dans P. J. Accardo, C. Magusen et A. J. Capute (dir.), Autism: Clinical and Research Issues (pp. 303-326). Timonium, MD : York Press.
Krauss M. W. Child-related and parenting stress: Similarities and differences between mothers and fathers of children with disabilities American Journal on Mental Retardation 1993 97 4 393 -404
Lee G. K., Lopata C., Volker M. A., Thomeer M. L., Nida R. E., Toomey J. A., and Smerbeck A. M. Healthrelated quality of life of parents of children with high-functioning autism spectrum disorders Focus on Autism and Other Developmental Disabilities 2009 24 4 227 -239
Lepage, L. (1984). Adaptation et validation d'une mesure de réseau de support social applicable en soins infirmiers. Mémoire de maîtrise inédit, Université de Montréal, Montréal, QC.
Lloyd-Williams M., Friedman T., and Rudd N. Criterion validation of the Edinburgh Postnatal Depression Scale as a screening tool for depression in patients with advanced metastatic cancer Journal of Pain and Symptom Management 2000 20 4 259 -265
Marmot M. Social determinants of health inequalities The Lancet 2005 365 9464 1099 -1104
Matthews R., Booth S. M., Taylor C. F., and Martin T. A qualitative examination of the work-family interface: Parents of children with autism spectrum disorder Journal of Vocational Behavior 2011 79 3 625 -239
McGill P., Papachristoforou E., and Cooper V. Support for family careers of children and young people with developmental disabilities and challenge behaviour Child: Care, Health and Development 2006 32 2 159 -165
Montes G. and Halterman J. S. Child care problems and employment among families with preschool-aged children with autism in the United States Pediatrics 2008 122 1 202 -208
Murray D. and Cox J. L. Screening for depression during pregnancy with the Edinburgh Depression Scale (EPD S) Journal of Reproductive and Infant Psychology 1990 8 2 99 -107
Murray S. Families’ care of their children with severe disabilities: Social policy and support Community, Work and Family 2007 10 2 215 -230
Myers B. J., Mackintosh V. H., and Goin-Kochel R. P. “My greatest joy and my greatest heart ache”: Parents’ own words on how having a child in the autism spectrum has affected their lives and their families’ lives Research in Autism Spectrum Disorders 2009 3 670 -684
Najman J. M., Andersen M. J., Bor W., O'Callaghan M. J., and Williams G. M. Postnatal depression: Myth and reality: Maternal depression before and after the birth of a child Social Psychiatry and Psychiatric Epidemiology 2000 35 1 19 -27
Nicole, G. (2010). La dépression postnatale, un diagnostic spécifique? Étude de la présence de symptômes de dépression chez les mères dans les cinq années suivant l'accouchement. Mémoire de maîtrise inédit, Université du Québec à Montréal.
Organisation mondiale de la santé. (2013). Déterminants sociaux de la santé. Consulté à http://www.who.int/social_determinants/fr/index.html
Osborne L. A., McHugh L., Saunders J., and Reed P. Parenting stress reduces the effectiveness of early teaching interventions for autistic spectrum disorders Journal of Autism and Developmental Disorders 2008 38 6 1092 -103
Plant K. M. and Sanders M. R. Predictors of caregiver stress in families of preschool-aged children with developmental disabilities Journal of Intellectual Disability Research 2007 51 2 109 -124
Quintero N. and McIntyre L. L. Sibling adjustment and maternal well-being: An examination of families with or without a child with autism spectrum disorder Focus on Autism and Other Developmental Disabilities 2010 25 1 37 -46
Rosenzweig J. M., Brennan E. M., Huffstutter K., and Bradley J. R. Child care and employed parents of children with emotional or behavioral disorders Journal of Emotional and Behavioral Disorders 2008 16 2 78 -89
Sawyer M. G., Bittman M., La G, Greca A. M., Crettenden A. D., Harchak T. F., and Martin J. Time demands of caring for children with autism: What are the implications for maternal mental health? Journal of Autism and Developmental Disorders 2010 40 5 620 -628
Schreck K. A. and Williams K. Food preferences and factors influencing food selectivity for children with food selectivity disorders Research in Developmental Disabilities 2006 27 4 353 -363
Seligman, M. et Darling, R. B. (2007). Ordinary families, special children: A systems approach to childhood disability. New York, NY : Guilford Press.
Sénéchal C. and des Rivières C. Impact de l'autisme sur la vie des parents Santé mentale au Québec 2009 34 1 245 -260
Sharpe D. L. and Baker D. L. Financial issues associated with having a child with autism Journal of Family and Economic Issues 2007 28 247 -264
Siklos S. and Kerns K. A. Assessing need for social support in parents of children with autism and Down syndrome Journal of Autism and Developmental Disorders 2006 36 7 921 -933
Simard, G. (2000). Échelle d’évaluation de l'autisme Gilliam. Document inédit.
South M., Williams B. J., McMahon W. M., Owley T., Filipek P. A., Shernoff E., and Ozonoff S. Utility of the Gilliam Autism Rating Scale in research and clinical populations Journal of Autism and Developmental Disorders 2002 32 6 593 -599
Weiss M. J. Hardiness and social support as predictors of stress in mothers of typical children, children with autism, and children with mental retardation Autism 2002 6 1 115 -130

Information & Authors

Information

Published In

cover image Canadian Journal of Community Mental Health
Canadian Journal of Community Mental Health
Volume 32Number 3September 2013
Pages: 29 - 49

History

Version of record online: 29 Octobre 2013

Mots-clés

  1. autism
  2. family
  3. psychological distress
  4. women
  5. health

Mots-clés

  1. autisme
  2. famille
  3. détresse psychologique
  4. femme
  5. santé

Authors

Affiliations

Isabelle Courcy
Université du Québec à Montréal
Catherine des Rivières-Pigeon
Université du Québec à Montréal

Metrics & Citations

Metrics

Other Metrics

Citations

Cite As

Export Citations

If you have the appropriate software installed, you can download article citation data to the citation manager of your choice. Simply select your manager software from the list below and click Download.

There are no citations for this item

View Options

View options

PDF

View PDF

Login options

Check if you access through your login credentials or your institution to get full access on this article.

Subscribe

Click on the button below to subscribe to Canadian Journal of Community Mental Health

Purchase options

Purchase this article to get full access to it.

Restore your content access

Enter your email address to restore your content access:

Note: This functionality works only for purchases done as a guest. If you already have an account, log in to access the content to which you are entitled.

Media

Media

Other

Tables

Share Options

Share

Share the article link

Share on social media