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A Qualitative Investigation into Barriers and Enablers for the Development of a Clinical Pathway for Individuals Living with FASD and Mental Disorder/Addictions

Publication: Canadian Journal of Community Mental Health
16 March 2020

Abstract

It is common for individuals with fetal alcohol spectrum disorders (FASD) to require support for mental health and addictions but there are challenges associated with receiving appropriate care in Canada. This qualitative investigation of the barriers and enablers to the development of a clinical pathway in mental health and addictions included focus groups of individuals with FASD, caregivers, family members, and clinicians. Data was thematically coded and the following themes are described: the absence of support outside of crisis, the struggle of navigating separated services, the common experience of service providers who lack understanding of FASD, and the benefits of FASD-informed care.

Résumé

Il est fréquent que les personnes atteintes d’un trouble du spectre de l’alcoolisation fœtale aient besoin de soutien en matière de santé mentale et de toxicomanie, mais il existe des défis associés à la prestation de soins appropriés au Canada. Cette enquête qualitative sur les obstacles et les catalyseurs à l’élaboration d’un cheminement clinique en santé mentale et en toxicomanie comprenait des groupes de discussion composés de personnes ayant un trouble du spectre de l’alcoolisation fœtale, des soignants, des membres de la famille et des cliniciens. Les données qui ont été codées thématiquement et les thèmes suivants sont décrits : l’absence de soutien en dehors de la crise, la difficulté de naviguer dans des services séparés, l’expérience commune des fournisseurs de services qui ne comprennent pas l’ensemble des troubles causés par l’alcoolisation fœtale et les avantages des soins éclairés.

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Information & Authors

Information

Published In

cover image Canadian Journal of Community Mental Health
Canadian Journal of Community Mental Health
Volume 38Number 3November 2019
Pages: 43 - 60

History

Version of record online: 16 March 2020

Key Words

  1. clinical pathway
  2. mental health
  3. addictions
  4. fetal alcohol spectrum disorder
  5. qualitative research

Mots-clés

  1. cheminement clinique
  2. santé mentale
  3. addictions
  4. trouble du spectre de l’alcoolisation fœtale
  5. recherche qualitative

Authors

Affiliations

Tara Anderson
University of Saskatchewan
Mansfield Mela [email protected]
University of Saskatchewan
Thomas Rotter
Nancy Poole
BC Women’s Hospital + Health Centre

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