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A Narrative Exploration of Sense of Belonging of Persons Living with Schizophrenia in the Community

Publication: Canadian Journal of Community Mental Health
8 April 2022

Abstract

This narrative inquiry consisting of an interview and a series of walkabouts with three persons living with schizophrenia identified five experiences: (1) feeling something was wrong, (2) being diagnosed, (3) a turning point, (4) their life starting over, and (5) achieving a feeling of peace or acceptance. All three narratives identified sense of belonging as the key to understanding movement through these stages. The implications for mental health practitioners are the need for patient access to peer social interactions during the early stages of diagnosis, opportunities for self-determination in care practices, and a greater focus on belonging within hospital settings.

Résumé

Cette étude narrative basée sur une entrevue et une série de promenades de socialisation organisées avec trois personnes schizophrènes a permis de mettre en évidence cinq étapes de leur expérience : (1) le sentiment que quelque chose ne va pas ; (2) le fait de recevoir un diagnostic ; (3) la prise de conscience d’être à un point décisif ; (4) le fait de réaliser la possibilité d’un nouveau départ ; (5) la manifestation d’une sensation d’apaisement ou d’acceptation. De ces trois récits, le « sentiment d’appartenance » est ressorti comme le fil conducteur du cheminement à travers ces différentes étapes. L’enseignement qui en résulte pour les professionnels en santé mentale est le besoin pour le patient d’avoir accès : aux interactions sociales avec leurs pairs au stade précoce de la maladie, aux opportunités d’autodétermination en matière de soins, et à l’importance de mettre l’accent sur le sentiment d’appartenance au sein du milieu hospitalier.

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References

American Psychological Association [APA]. (2013). Diagnostic and statistical manual of mental disorders (5th ed.). American Psychiatric Publishing.
Angrosino M. V. 1994 On the bus with Vonnie Lee: Explorations in life history and metaphor Journal of Contemporary Ethnography 23 1 14 -28
Arai S. and Pedlar A. 1997 Building communities through leisure: Citizen participation in a healthy communities initiative Journal of Leisure Research 29 2 167 -182
Aubin G., Stip E., Gélinas I., Rainville C., and Chapparo C. 2009 Daily activities, cognition and community functioning in persons with schizophrenia Schizophrenia Research 107 313 -318
Barut J. K., Dietrich M. S., Zanoni P. A., and Ridner S. H. 2016 Sense of belonging and hope in the lives of persons with schizophrenia Archives of Psychiatric Nursing 30 2 178 -184
Browne J., Nagendra A., Kurtz M., Berry K., and Penn D. L. 2019 The relationship between the therapeutic alliance and client variables in individual treatment for schizophrenia spectrum disorders and early psychosis: Narrative review Clinical Psychology Review 71 51 -62
Coles, R. (1989). The call of stories: Teaching and the moral imagination. Mariner Books.
Creswell, J. W. (2009). Research design: Qualitative, quantitative, and mixed methods approaches (3rd ed.). Sage Publications, Inc.
Creswell, J. W., & Creswell, J. D. (2018). Research design: Qualitative, quantitative, and mixed methods approaches (5th ed.). Sage Publications, Inc.
Danforth S. 1995 Toward a critical theory approach to lives considered emotionally disturbed Behavioral Disorders 20 2 136 -143
Farone D. W. 2006 Schizophrenia, community integration, and recovery: Implications for social work practice Social Work in Mental Health 4 4 21 -26
Gerber G. J., Coleman G. E., Johnson L., and Lafave H. G. 1994 Quality of life of people with psychiatric disabilities 1 and 3 years after discharge from hospital Quality of Life Research 3 379 -383
Hutchison P. and Potschaske C. 1998 Social change and institutions: Implications for recreationists Therapeutic Recreation Journal 32 2 130 -156
Insel T. R. 2010 Rethinking schizophrenia Nature 468 187 -193
Işık I. and Ergün G. 2019 Hope and belonging in patients with schizophrenia: A phenomenological study Perspectives in Psychiatric Care 56 2 235 -242
Mahar A. L., Cobigo V., and Stuart H. 2013 Conceptualizing belonging Disability & Rehabilitation 35 12 1026 -1032
Marcus M. and Westra H. 2012 Mental health literacy in Canadian young adults: Results of a national survey Canadian Journal of Community Mental Health 31 1 -15
McCormach C. 2000 From interview transcript to interpretive story: Part 1 – viewing the transcript through multiple lenses Field Methods 12 4 282 -297
Ogden L. P. 2014 “Waiting to go home”: Narratives of homelessness, housing and home among older adults with schizophrenia Journal of Aging Studies 29 53 -65
Packer S., Husted J., Cohen S., and Tomlinson G. 1997 Psychopathology and quality of life in schizophrenia Journal of Psychiatry and Neuroscience 22 4 231 -234
Polkinghorne, D. (1988). Narrative knowing and the human sciences. Suny Press.
Prince P. N. and Gerber G. J. 2005 Subjective well-being and community integration among clients of assertive community treatment Quality of Life Research 14 161 -169
Public Health Agency of Canada. (2006). The human face of mental health and mental illness in Canada (Cat. No. HP5-19/2006E). Canadian Government Printing Office.
Richardson L. 1990 Narrative and sociology Journal of Contemporary Ethnography 19 116 -135
Roe D. and Davidson L. 2005 Self and narrative in schizophrenia: Time to author a new story Medical Humanities 31 2 89 -94
Sealy P. and Whitehead P. C. 2004 Forty years of deinstitutionalization of psychiatric services in Canada: An empirical assessment Canadian Journal of Psychiatry 49 4 249 -257
Townley G., Kloos B., and Wright P. A. 2009 Understanding the experience of place: Expanding methods to conceptualize and measure community integration of persons with serious mental illness Health & Place 15 520 -531
Warner, R. (2004). Recovery from schizophrenia: Psychiatry and political economy (3rd ed.). Brunner-Routledge.
Wastler H., Lucksted A., Phalen P., and Drapalski A. 2019 Internalized stigma, sense of belonging, and suicidal ideation among veterans with serious mental illness Psychiatric Rehabilitation Journal, Advance online publication 1 -6

Information & Authors

Information

Published In

cover image Canadian Journal of Community Mental Health
Canadian Journal of Community Mental Health
Volume 41Number 1January 2022
Pages: 90 - 101

History

Version of record online: 8 April 2022

Key Words

  1. belonging
  2. schizophrenia
  3. self-determination
  4. walkabouts

Mots-clés

  1. appartenance
  2. schizophrénie
  3. autodétermination
  4. promenades de socialisation

Authors

Affiliations

Devan Mark Joseph McNeill
University of Waterloo
Susan M. Arai
University of Waterloo

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