Open access

Real-Time Needs, Real-Time Care: Creating Adaptive Systems of Community-Based Care for Emerging Adults

Publication: Canadian Journal of Community Mental Health
24 April 2017

Abstract

Research indicates a decline in mental health service utilization between the ages of 16 to 25, leaving emerging adults with mental illness at risk for worsening outcomes. The authors utilized a community-based participatory research (CBPR) approach to explore the mental health landscape for youth aged 16–25 in London, Canada. Interviews and focus groups (n = 30) with community and hospital system leaders, youth and caregivers were transcribed and coded using an approach informed by constructivist grounded theory. There was consensus regarding difficulties in the current system including wait times and crisis-driven services leading to powerlessness among youth and caregivers. Solutions include delivery of services through a flexible, real-time system that emphasizes patient and caregiver engagement, youth centric services and recovery-oriented care across the hospital/community continuum. The results highlight that disparate stakeholders agree regarding the need for transformational change shifting away from traditional medical models.

Resumen

La recherche montre une baisse de l’utilisation des services de santé mentale chez les jeunes de 16 à 25 ans : les adultes émergents qui vivent avec une maladie mentale sont donc à risque de se retrouver avec des problèmes toujours plus graves. Les auteurs de cet article présentent la recherche participative communautaire qu’ils ont menée pour explorer la situation des jeunes de 16 à 25 ans, à London, en Ontario, en matière de santé mentale. Ils ont réalisé des entrevues et mené des groupes de discussion (n=30) avec des responsables de la communauté et du système hospitalier, avec des jeunes et avec des personnes soignantes ; ces conversations ont été transcrites et encodées à l’aide d’une approche qui s’appuie sur la théorisation ancrée constructiviste. Les auteurs ont observé un consensus en ce qui a trait aux difficultés qu’entraîne le système actuel, comme les longs temps d’attente et le fait que les services sont surtout offerts en cas de crises, ce qui laisse les jeunes et les personnes soignantes avec un sentiment d’impuissance. Pour régler ces problèmes, il faudrait que les services soient offerts grâce à un système flexible qui répond aux besoins au moment où ils se posent et qui met l’accent sur la participation des jeunes et des personnes soignantes ; ces services devraient également être axés sur les jeunes et sur le rétablissement, et offerts à la fois dans les hôpitaux et dans la communauté. L’étude montre que les différents participants et intervenants s’entendent sur le fait que le système actuel, basé sur les modèles médicaux traditionnels, doit être modifié pour s’en éloigner.

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References

Barwick M., Urajnik D., Sumner L., Cohen S., Reid G., Engel K., and Moore J. E. 2013 Profiles and service utilization for children accessing a mental health walk-in clinic versus usual care Journal of Evidence-Based Social Work 10 4 338 -352
Bate P., Robert G., and Bevan H. 2004 The next phase of healthcare improvement: What can we learn from social movements? Quality and Safety in Health Care 13 1 62 -66
Bell, J., Vromen, A., & Collin, P. (2008). Rewriting the rules for youth participation: Inclusion and diversity in government and community decision making. Retrieved from http://www.uws.edu.au/__data/assets/pdf_file/0009/476343/rewriting_the_rules_for_youth_participation.pdf
Black R., Walsh L., and Taylor F. 2011 Young people on the margins: What works in youth participation Youth Studies Australia 30 1 42 -48
Cairney, J., Gandhi, S., Guttmann, A., Iron, K., Khan, S., Kurdyak., …Yang., J. (2015). The Mental Health of Children and Youth in Ontario: A Baseline Scorecard. Retrieved from http://www.ices.on.ca/flippublication/MHASEF_Report_2015/files/assets/common/ downloads/publication.pdf
Canadian Mental Health Association. (2014). Canadian Mental Health Association fast facts about mental health. Retrieved from http://www.cmha.ca/media/fast-facts-about-mental-illness/#.U5zBePldV8E
Cappelli M., Davidson S., Racek J., Leon S., Vloet M., Tataryn K., and Lowe J. 2014 Transitioning youth into adult mental health and addiction services: An outcomes evaluation of the Youth Transition Program Journal of Behavioral Health Services & Research 1 -13
Carver, J., Cappelli, M., Davidson, S., Caldwell, W., Bélair, M. A., & Vloet, M. (2015). Taking the next step forward: Building a responsive mental health and addictions system for emerging adults [Executive Summary]. Ottawa: Author.
Chanen A. M., Jackson H. J., McCutcheon L. K., Jovev M., Dudgeon P., Yuen H. P., and … Germano D. 2009 Early intervention for adolescents with borderline personality disorder: Quasi-experimental comparison with treatment as usual Australian and New Zealand Journal of Psychiatry 43 5 397 -408
Charmaz, K. (2006). Constructing grounded theory: A practical guide through qualitative analysis. London: Sage Publications.
Charmaz, K. (2014). Constructing grounded theory (Vol. 2nd). London: Sage Publications.
Christopher S., Watts V., McCormick A. K., and Young S. 2008 Building and maintaining trust in a communitybased participatory research partnership American Journal of Public Health 98 8 1398–1406 doi.org/10.2105/AJPH.2007.125757
Coates D. and Howe D. 2014 The importance and benefits of youth participation in mental health settings from the perspective of the Headspace Gosford Youth Alliance in Australia Children and Youth Services Review 46 294 -299
Davidson L., Shaw J., Welborn S., Mahon B., Sirota M., Gilbo P., and … Pelletier J. F. 2010 “I don’t know how to find my way in the world”: Contributions of user-led research to transforming mental health practice Psychiatry 73 2 101 -113
England E., Lester H., and Birchwood M. 2009 Collaborating to provide early-intervention services to persons in England with first-episode psychosis Psychiatric Services 60 11 1484 -1488
Gilchrist, V. J., & Williams, R. L. (1999). Key informant interviews. In B. F. Crabtree & W. L. Miller (Eds.), Doing qualitative research (2nd ed.; pp. 71–88). Thousand Oaks, CA: Sage Publications.
Glover G. R., Robin E., Emami J., and Arabscheibani G. R. 1998 A needs index for mental health care Social Psychiatry and Psychiatric Epidemiology 33 2 89 -96
Hart, R. A. (2013). Children’s participation: The theory and practice of involving young citizens in community development and environmental care. New York, NY: Routledge.
Hayes, A., Gray, M., & Edwards, B. (2008). Social inclusion origins, concepts and key themes. Paper prepared by the Australian Institute of Family Studies for the Social Inclusion Unit, Department of the Prime Minister and Cabinet, Australia. Commonwealth of Australia. Retrieved from http://apo.org.au/files/Resource/social_inclusion_origins
Hollis C., Morriss R., Martin J., Amani S., Cotton R., Denis M., and Lewis S. 2015 Technological innovations in mental healthcare: Harnessing the digital revolution The British Journal of Psychiatry 206 4 263 -265
Horton S., Stalker C. A., Cait C. A., and Josling L. 2012 Sustaining walk-in counselling services: An economic assessment from a pilot study Healthcare Quarterly 15 3 44 -49
Hovish K., Weaver T., Islam Z., Paul M., and Singh S. P. 2012 Transition experiences of mental health service users, parents, and professionals in the United Kingdom: A qualitative study Psychiatric Rehabilitation Journal 35 3 251 -257
Howe D., Batchelor S., and Bochynska K. 2011 Finding our way: Youth participation in the development and promotion of youth mental health services on the NSW Central Coast Advances in Mental Health 10 1 20 -28
Hymmen P., Stalker C. A., and Cait C. A. 2013 The case for single-session therapy: Does the empirical evidence support the increased prevalence of this service delivery model? Journal of Mental Health 22 1 60 -71
Israel, B. A., Eng, E., Schulz, A. J., & Parker, E. (2005). Methods in community-based participatory research for health. San Francisco: Jossey-Bass.
Leamy M., Bird V., Le Boutillier C., Williams J., and Slade M. 2011 Conceptual framework for personal recovery in mental health: Systematic review and narrative synthesis The British Journal of Psychiatry 199 6 445 -452
Leese D., Smithies L., and Green J. 2014 Recovery-focused practice in mental health Nursing Times 110 12 20 -22
Matthews H. 2001 Citizenship, youth councils and young people’s participation Journal of Youth Studies 4 3 299 -317
McGorry P. D., Killackey E., and Yung A. R. 2007 Early intervention in psychotic disorders: Detection and treatment of the first episode and the critical early stages Medical Journal of Australia 187 7 S8 -10
Mental Health Commission of Canada. (2015a). Recovery Guidelines. Ottawa, ON: Author.
Mental Health Commission of Canada. (2015b). Taking the Next Step Forward: Building a Responsive Mental Health and Addictions System for Emerging Adults. Ottawa, ON: Author.
Mihalopoulos C., Harris M., Henry L. P., Harrigan S. M., Farrelly S. F., Schwartz O. S., and … Prosser A. L. 2007 Are the short-term cost savings and benefits of an early psychosis program maintained at 8-year follow-up? Schizophrenia Bulletin 33 2 487 -487
Mihalopoulos C., McGorry P. D., and Carter R. C. 1999 Is phase‐specific, community‐oriented treatment of early psychosis an economically viable method of improving outcome? Acta Psychiatrica Scandinavica 100 1 47 -55
Monson K. and Thurley M. 2011 Consumer participation in a youth mental health service Early Intervention in Psychiatry 5 4 381 -388
Muñoz-Solomando A., Townley M., and Williams R. 2010 Improving transitions for young people who move from child and adolescent mental health services to mental health services for adults: Lessons from research and young peopleʼs and practitionersʼexperiences Current Opinion in Psychiatry 23 4 311 -317
Osuch E. A., Vingilis E., Fisman S., and Summerhurst C. 2016 Early intervention in mood and anxiety disorders: The first episode mood and anxiety program (FEMAP) Healthcare Quarterly 18 S42 -49
Pelletier J. F. 2014 The role of consumers in participatory action research. A Canadian experience Health Issues 113 30 -33
Pelletier J. F., Rowe M., Francois N., Bordeleau J., and Lupien S. 2013 No personalization without participation: On the active contribution of psychiatric patients to the development of a mobile application for mental health BMC Medical Informatics and Decision Making 13 78
Pieh-Holder K. L., Callahan C., and Young P. 2012 Qualitative needs assessment: Healthcare experiences of underserved populations in Montgomery County, Virginia, USA Rural and Remove Health 12 3
Pottick K. J., Bilder S., Vander Stoep A., Warner L. A., and Alvarez M. F. 2008 US patterns of mental health service utilization for transition-age youth and young adults The Journal of Behavioral Health Services & Research 35 4 373 -389
Ramey H. L. and Rose-Krasnor L. 2015 The new mentality: Youth–adult partnerships in community mental health promotion Children and Youth Services Review 50 28 -37
Ryall V., Radovini S., Crothers L., Schley C., Fletcher K., Nudds S., and … Groufsky C. 2008 Intensive youth outreach in mental health: An integrated framework for understanding and intervention Social Work in Mental Health 7 153 -175
Singh S. P. 2009 Transition of care from child to adult mental health services: The great divide Current Opinion in Psychiatry 22 4 386 -390
Singh S. P., Paul M., Ford T., Kramer T., and Weaver T. 2008 Transitions of care from child and adolescent mental health services to adult mental health services (TRACK study): A study of protocols in greater London BMC Health Services Research 8 135
Stafford M. R., Jackson H., Mayo-Wilson E., Morrison A. P., and Kendall T. 2013 Early interventions to prevent psychosis: Systematic review and meta-analysis British Medical Journal 13
Sukhera J., Fisman S., and Davidson S. 2015 Mind the gap: A review of mental health service delivery for transition age youth Vulnerable Children and Youth Studies 10 4 271 -280
Tataw D., Bazargan H. S., and James W. F. 2011 Actualizing a provider alliance to expand health services access to a low-income urban community Social Work in Public Health 26 7 651 -671
Torous J., Staples P., and Onnela J. P. 2015 Realizing the potential of mobile mental health: New methods for new data in psychiatry Current Psychiatry Reports 17 8 602
Vaughn L. M., Wagner E., and Jacquez F. 2013 A review of community-based participatory research in child health The American Journal of Maternal/Child Nursing 38 1 48 -53
Wade D., Johnston A., Campbell B., and Littlefield L. 2007 Early intervention services in youth mental health Clinical Psychologist 11 3 108 -114
Walker, L., Verins, I., Moodie, R., & Webster, K. (2005). Responding to the social and economic determinants of mental health: A conceptual framework for action. In H. Hemman, S. Saxena, & R. Moodie (Eds), Promoting mental health: Concept, emerging evidence, practice, pp. 89–108. Geneva Switzerland: World Health Organization.
While A., Forbes A., Ullman R., Lewis S., Mathes L., and Griffiths P. 2004 Good practices that address continuity during transition from child to adult care: Synthesis of the evidence Child: Care, Health and Development 30 5 439 -452
Wilf-Miron R., Sikron F., Glasser S., and Barell V. 2002 Community-based adolescent health services in Israel: From theory to practice International Journal of Adolescent Medicine and Health 14 2 139 -144

Information & Authors

Information

Published In

cover image Canadian Journal of Community Mental Health
Canadian Journal of Community Mental Health
Volume 36Number 1May 2017
Pages: 41 - 53

History

Version of record online: 24 April 2017

Key Words

  1. transition
  2. youth
  3. emerging adult
  4. community
  5. youth engagement

Mots-clés

  1. transition
  2. jeunes
  3. adultes émergents
  4. communauté
  5. participation des jeunes

Authors

Affiliations

Javeed Sukhera [email protected]
London Health Sciences Centre
Jill Lynch
London Health Sciences Centre
Nancy Wardrop
London Health Sciences Centre
Kristina Miller

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